Monthly Archives: February 2010

An awkward moment

Here we are in gorgeous downtown Charleston, SC. It’s cold but the glorious sun is shining. I promised my daughter that we would do something fun while visiting Grandma. I decided to take her on a carriage ride of downtown.

This is a perfect time of year for a carriage ride of Charleston. There are not many tourists in town and the weather is not sweltering like in the summer.

Off we go to the carriage company. Little did I know the cool weather was going to bring out the crazies on the ride. The Carriage tour had a petting zoo inside of the barn which was entertaining since you had to wait for your assigned ride. Now, in this petting zoo was a miniature pony. Now here is where crazy comes in. My daughter was going to see the pony when a grown man jumped in and started to scream ‘Pony bites, Pony bites’. While he is screaming this, he is trying to stick his fingers down the poor horse’s throat and up it’s nose at the same time! At this point I am praying the pony bites the crazy man. My daughter started to back away from the petting zoo area. Smart move.

Finally the carriage ride is about to start. There are about 12 passengers on the ride. A couple visiting from California not only decided to take their newborn on this hour-long ride but also their Australian Sheep dog who sometimes bites. I was happy to see they sat all the way in the back of the carriage with dog in tow. Ashley and I sat in the front with the Carriage driver/Tour guide.

The tour was going well. We had a great guide and Ashley was enjoying every minute of it. Now as I stated before it is cold today – too cold for a baby to be in an open carriage feeling the ocean breeze. The baby started to scream and I truly felt sorry for the poor kid. It got so bad, that the parents offered to walk back and the carriage driver happily agreed to let them off.

While departing the carriage, the tour guide said to the couple ‘Be careful stepping off, midgets got hurt leaving the carriage’. Now remember I was sitting in the front facing the tour guide. Needless to say as the words left his mouth, he wanted to take it back. He turned red and I mean beet red! He exclaimed ‘I am so sorry ma’am, I didn’t mean to say that’! I really wasn’t paying attention to what he said, I was admiring the scenery at the time. I said that it’s okay I wasn’t listening. He said ‘I act so retarded sometimes!’ Now I busted out laughing. ‘Oh my God’ he exclaimed, I just did it again! He apologized again. I told him no worries, I am not Sarah Palin. Then we both laughed and he told me this is the most embarrassing moment he ever had. I wasn’t offended – and yes a dwarf can get hurt jumping out of the carriage.

The carriage ride ended. Matthew, the tour guide, and me ‘hugged it out’ and then I proceeded to find a place to get hot coffee.

I wasn’t offended by what he said. Sometimes people just don’t think. I guarantee Matthew will never do that again!

Favorite Movie Lines

Facebook is having favorite movie lines week. I thought I would share some of my all time favorites with you.

1. Annelle: We are in the house of the Lord!
Clairee Belcher: Oh like she cares. Ousier’s never done a religious thing in her life.
Ouiser Boudreaux: Now that is not true. When I was in school, a bunch of my friends and I would dress up as nuns and go bar –

2. Maurice: Hey, I started out mopping the floor just like you guys. But now… now I’m washing lettuce. Soon I’ll be on fries; then the grill. And pretty soon, I’ll make assistant manager, and that’s when the big bucks start rolling in.

3. Ophelia: [Ophelia notices Louis watching her undress] By the way, food and rent aren’t the only things around here that cost money. You sleep on the couch.

4. Dr. Frederick Frankenstein: Now that brain that you gave me. Was it Hans Delbruck’s?
Dr. Frederick Frankenstein: Ah! Very good. Would you mind telling me whose brain I DID put in?
Igor: Then you won’t be angry?
Dr. Frederick Frankenstein: I will NOT be angry.
Igor: Abby Someone.
Dr. Frederick Frankenstein: Abby Someone. Abby who?
Igor: Abby Normal.
Dr. Frederick Frankenstein:Abby Normal?
Igor: I’m almost sure that was the name.
Dr. Frederick Frankenstein: Are you saying that I put an abnormal brain into a seven and a half foot long, fifty-four inch wide GORILLA?

and finally…

Earl Mott: Who said that?
Lt. Walters: This could very well be the stupidest person on the face of the earth. Perhaps we should shoot him.
Earl Mott: Really?

In the comments, write what movies you think they are from and also include some of your own favorite lines.

My daughter’s boredom is getting to me so we are off to Grandma’s for a couple of days. Hope you have a great weekend!

The life of Riley..really Jaxs

Let me introduce you to Jaxs. He is the laziest cat on the planet. All he does is eat and sleep. He doesn’t chase balls of yarn nor does he get excited by the birds that fly by the window. He has no worries other than when will his next feeding be.

He is not stressed out about health insurance, promoting a business or if Ashley is adjusting to her new surroundings.Again his main concern is getting Ashley down early in the morning to fill his food bowl.

Jaxs I am envious of you! I wish I had your life. Don’t we all!

It’s Tuesday..

My daughter has been on vacation/tracked out for the past week and I am about done with hearing ‘I am bored’! You see my daughter goes to year round school. It is a new experience for both me and my daughter. This is how year round school works. Kids go to school for 9 weeks(track-in) then on the tenth week they are tracked out for three weeks vacation. There are four different tracks that kids are assigned to. Each track has a different track-in/track-out calendar. I know it’s very confusing, it was to us and still is.

You are now probably wondering when do they get promoted to the next grade if it’s a year round calendar. The county sets a school year end date of June 30th for all tracks. The new school year starts a week after the year end date.

Wake County schools have year round calendar because it reduces class size and the need to build new schools. My daughter is in track 2 which is not a popular track because of the way their track-out calendar falls. Since her track is not popular her class is small.There is only 22 kids in her class. Due to the class size being small they get to try different things like team time.

That was the positive side of all year round school. The negative is my daughter is home from school in the middle of February when the weather is lousy. Another minus is her summer vacation isn’t until the very end of August so she goes to school for most of the summer.What else I hate is that all the kids in the neighborhood are on different tracks. When she is tracked out, she really doesn’t have any playmates.

As you can tell, I am not a big fan of year round school. It’s just another thing I am trying to get used to since the move.

Even though my time has been spent as activity director, I was able to get a little scrapbooking done this week. Here is the page I created using the new Basic Grey line ‘Origins’. The title is in a Journaling block from the line as well as the brads used. In the journaling area I used Jenni Bowlin buttons and calendar. I love the look of the Jenni Bowlin calendar cards. In fact I love most of the vintage items coming out on the market. My favorite vintage company is 7 Gypsies. AC Moore now sells 7 Gypsies which made me very excited today(I know I lead a very boring life).

Last night I watched one of my favorite shows ‘The Little Couple’ on TLC. It’s about a newly married dwarf couple. The wife(Jen) is a doctor and the husband(Bill) runs his own business. I love this show because it so reminds me of me and my husband.The dynamics between them is exactly like us. Bill tries to fix something and then Jen comes home and changes everything around! Just like Me and Rich. I have a six degree connection to Jen. My doctor in Pittsburgh was her professor at Pitt. She told me that Jen was a very determined young lady. You can definitely tell that she is a good doctor! You must check it out. It is really a good show!

I must go, I need to think about dinner. Hope you are having a great week!


The weather fits my mood today. Here is why. My daughter has a genetic condition called Turners Syndrome. Basically what the condition boils down to she will be short stature unless treated by a growth hormone injection. Since her body does produce the hormone just very slowly, she can get these injections safely.

Now to why I am frustrated. Every year you have to get a new prescription for the growth hormone. The prescription will last a whole year. It is set-up this way so you can just order the medicine when needed. Since moving not only did we need to get a new prescription but also had to have our address changed with Eli-Lilly who monitors the program. UNC Children’s health was to handle all the changes and told me back in OCTOBER this was completed. For some reason, UNC never did the change of address for us and only wrote the prescription script for January not the whole year! This is a major pain-in-the-ass because now I have to go through the approval process again with the pharmaceutical company.

Since I have been trying to resolve this issue since January, I am about out of time and patience. Yesterday when I called UNC and asked the person at UNC Endocrinology what went wrong and when will it be resolved, her response was very vague(vague meaning that you can hear the air floating around her brain). I then asked for her supervisor to which she laughed. After giving me her supervisor’s name and number, she told me there was nothing she can do today for my problem!

To make a long story short, my third call to the supervisor’s voice mail to which I threatened to call UNC Patient Relations over this matter, I finally got a call back. She apologized for her employee and herself. She told me she is going to look into this issue first thing in the morning and get right back to me.

Well, that was yesterday and it’s 10:42 and I still haven’t heard. Folks we have a broken healthcare system. I don’t care if you are a Republican, Democratic or Independent, we should all get behind reform. I want a reliable system that flows and one that we don’t have to get bogged down with paper. Costs too should be kept in check. These injections cost $1000.00 a vial and my out of pocket is $200.00 a month. The only people benefiting from this system is the fat cat health providers and the insurance companies. At one time everyone is going to have a health crisis and if you have insurance or not, you will have a fun time trying to get your procedures and medicine approved. We need reform and we need reform NOW.

Getting a little political brings me to the cool place I went to on Sunday with my neighbors. My new neighbors are precinct chairs for the Democratic Party of Raleigh. There is going to be a run-off in November for the State Congressional seat for this precinct. The Democratic nominee is the incumbent Chris Haggerty. Sunday was the kick off for his campaign.The campaign kick off was held at the Goodwin house. The Goodwin house is the home of the Democratic party for the State of North Carolina. I loved going into this house. I love old architecture. Old architecture will be another topic, another time.

It was a very interesting meeting. I found out that our precinct is not interested in education, taxes or jobs but puppy mills! My face dropped when Mr.Haggerty said this is the number one issue his office gets inquiries for. I just couldn’t believe it. Now don’t get me wrong, I am against puppy mills but I think there are more pressing issues going on especially in Wake County. Our school superintendent just quit, many companies in RTP are laying off and everyone is worried about their taxes going up(or at least, I thought).

Now his republican opponent is not addressing any of the issues that I stated above. The republican platform is secession from the United States. I am not kidding. The republican candidate wants North Carolina to secede from the United States!

This meeting was a real eye opener for me. I didn’t know puppy mills and secession were the biggest issues facing North Carolinians! If you are a Democrat, Republican, Libertarian or Martian, we as Americans need to get involved in our government. This madness needs to stop and the only people that can do this is us. Remember we are ‘we the people’. If we don’t get involved, the wheel will stay broken. Go out and find out who is in your local level of government and find out what are the local level issues. I promise you will be as surprised as I was.

Dwarfism 101

One of my goals is to use this blog to dispel some of the misconceptions people have of the dwarf community. People unfortunately get the stereotypical conception of little people due to ignorance. Ignorance comes from how we are portrayed in movies and television.

Let me first start off with the Wikipedia meaning of dwarfism.Dwarfism is short stature resulting from an abnormal medical condition. It is sometimes defined as an adult height of less than 4 feet 10 inches although this definition is problematic because short stature in itself is not a disease.

Dwarfism can be caused by over 200 distinct medical conditions and as such the symptoms and characteristics of individual dwarfs vary greatly. The most common of these conditions is Achondroplasia. I am an achondroplasia dwarf. 70% of the dwarfs in America are Achondroplasia. In Achondroplasia the trunk is normally sized with the limbs being disproportionately short, the head being larger than usual, and the forehead being prominent. Other popular types of dwarfism are Diastrophic Dysplasia and Pseudoachondroplasia . My husband falls under the Diastrophic Dysplasia type. His diagnosis is Kneist syndrome which is a really rare form of dwarfism.

Now to our question and answer section. I am going to answer some of the common questions I get asked when people first meet me.

1. Is your family like you? In most cases the answer is ‘No’. My family is average size. Average size people have dwarf babies(I know you are shocked). One in every 40,000 births an Achondroplasia baby is born. Kneist is one in every 500,000 births. My husband is truly a rare find and wasn’t I Iucky to find him!

2.Do you live in a small house? Okay the two times I was asked this my reply was ‘Where the hell do you think I live?’ ‘Do you think I live in Lilliput?’. Honestly folks do not be that ignorant. We live in normal houses in normal neighborhoods. Our houses may have some adaptive equipment but the houses are what you live in not playhouses.

3.Is your furniture small? Again I refer back to the Lilliput reference. Unless I am missing something when I go to Lazy Boy or Ethan Allen, furniture comes in one size. I do not buy my furniture from the Kebbler Elves. Lazy Boy offers better financing than the Kebbler Elves. Those Elves rip you off!

4.Where do you buy your Clothes? Same stores you do. After we buy clothes, they have to be tailored. This is the part that most little people get ticked at. We pay double the price for our clothing because of the tailoring involved. It sucks but you can’t go around naked.

5. Why can’t I call you Midget? The term Midget is very offense to us. It is exactly like using the ‘N’ word to describe African Americans. Not cool and very derogatory. It is also an off base reference. A midget is in proportion and is very short. Again probably the dwarf you are seeing is Achondroplasia which are not in proportion. Midgets are no longer in existence since discovering that they can grow through injections of growth hormones. So please teach your kids to use terms like ‘little people’ or ‘dwarfs’ when describing people like me.

6. If you have kids, will they be little like you? Yes and no. If two dwarfs have a baby. The baby has a 50/50 chance of being a dwarf. If a dwarf and an average height person have a baby, the chance is 25%. Now here is where it gets complicated. If two dwarfs of different types have a baby, the chances are 25% for each type of dwarfism, 25% of having both dwarfism characteristics(which is really bad health wise) and 25% it will be average size. The part that the baby can have both types of dwarfism, lead me and my husband to the decision to adopt.

7.Finally ‘Do you have Sex’? Given my answer for number 6, yes. I will not get into the specifics. I will let your dirty little mind go wild with this question.

Also another pet peeve of mine, we all don’t look alike. Everyone mistakes us for another dwarf they have seen. I have been mistaken for Amy Roloff, the dog trainer from Pet Smart and worse the horrible check out lady at the grocery store. I don’t have blonde hair so I am not Amy Roloff. The Pet smart girl was about a foot shorter than me and had green eyes. I can’t even describe to you what the checkout girl at the Giant Eagle looked like(Hagar the horrible comes to mind). I know my girlfriends in Pittsburgh are laughing now. So please make sure it is the dwarf you know before going ‘Hey you worked late last night at the Giant Eagle!’. Ugghhh….!

I hope that I cleared up some misconceptions. I love having this blog and I feel it will be a great way to spread correct information about dwarfs.

Have a great weekend and stay tuned. I promise a scrapbooking Project soon!

Winter CHA Releases

Finally made it to Archivers. I was looking for the new Cosmo Cricket line Material Girl but they didn’t have it yet. I did find the new Basic Grey Origins line, Serendipity line from K&Company and the Tattered Angels glimmer mist.

If you go to the back of Archivers, you can score some sweet deals on product! These Items were in the $1.99 bins! American Crafts mini album, Cosmo Cricket Ever After Stickers and Love Notes from Making Memories were all in the bins. I always check the back first for the deals!.

Later this week, I will make a page layout with some of these goods and show you what I created.

Until then I made this layout last week. It is layout about my old(sigh,,,,) house in Pittsburgh. I used Cosmo Cricket’s Early Bird and Bazzill Swiss Dots paper. For the embellishments, I used antique buttons from my mom’s button jar. I cleaned and shined the buttons before putting on the page. For the journaling blog, I used a graph paper and used red ink for the font color. Pretty cool looking huh!

It’s still freezing outside. Why don’t you stay inside and create! Let me know how it comes out.

Fat Tuesday

It’s Fat Tuesday, the day we Catholics get to party before Lent starts. As usual Rich and I are giving up fried food for Lent. For non-Catholics, Ash Wednesday signifies the start of Lent. Lent is the six weeks before Easter Sunday. During these six weeks, you are supposed to sacrifice something you love. This sacrifice is to acknowledge that God sacrificed his son for us. It is a time of reflection in the Catholic church.

So back to fat Tuesday. We decide to get our wing craving fix before we had to give them up. We went to Buffalo Wings and Rings for lunch.

This is tough. This is what I am giving up. I don’t know about this. I am only human.

I asked my daughter what she is giving up. I suggested some items like Spongebob or the need to eat candy 24-7. She had a better idea. She is giving up brushing her teeth! I told her this was not an option. She is still thinking about her options. I will let you know her decision.

On the homefront, one thing dwarfs can do to earn extra money. You want to know what it is? NO it’s not that(get your mind out of the gutter!). Rent out the tops of their Kitchen Cabinets!

Unfortunately this house has more top cabinets than low. Which sucks from my perspective. I should just rent them out to the neighborhood and make money! What do you think? You know how much money us little people can make? I bet a ton.

I finally got to go to Archivers(reasons why I am thinking of ways to make more money). The new CHA items are in. My next post will show you my findings.

Take care and please eat some fried food for me!

Happy VD to everyone!

That line was a lot funnier in high school. Anyway, Happy Valentines day! I hope you all have a sweetie who treated you well today! I did. My daughter actually bought me a valentine! Usually she just buys for her daddy!

As I promised, I will answer the number one question presented to dwarfs when approached by average size people. How do we drive? It’s very simple. We have pedal extenders that attach to the regular car pedals.

A man named Chuck Secor out in California made these great easy to attach pedals. If you are semi-mechanical, you can attach them yourself. Since my husband and I are not, we have the dealership attach them for us.

Here is a picture of my husband’s car with the attachments.

This is how his seat is setup. He needs pillows to push his height up in the car. I have the opposite problem. I can see out the window well but I cannot sit all the way back. My pillows go as back cushions.

This is my car. I would show you the inside but it’s a ‘mom mobile’. It has candy wrappers, lollipop sticks, broken Polly Pockets and other assorted junk spread all over. It’s a mess. I promised my husband come springtime, I will get it cleaned.

Funny story today about director Kevin Smith that I would like to share with you. For those who don’t know who Kevin Smith is he is a director/writer out of my home state of New Jersey. He wrote such movies as Clerks and Dogma. I love his movies because it’s Jersey humor.

Today he posted on twitter that he was thrown off of a Southwest Airlines flight from Oakland to Burbank because he was too fat. He was tossed off after he was seated on the plane and everyone on the plane recognized him as ‘Silent Bob’. Can you believe everyone on the plane saw Silent Bob get told to leave because he was fat! That is too much. The irony was that the let him board the next flight out of Oakland. So what was the point other than to humiliate the poor guy. My heart goes out to you Kevin and to anyone else who has been wronged by the airline industry.

My husband just informed me that he ate all his candy and is looking at mine. So I must leave. I hope you have a romantic night ahead. I am getting ready to watch the Amazing Race! Have fun!

Snow Again….

I thought I moved from Pittsburgh to get away from this weather! It must have followed me. I was going to go to Archivers today to see if they have the new papers from the Craft and Hobby show but the weather has foiled my plans. Hopefully I will be able to get out soon.

Until then you can look at the Valentine card I made from old stash. I used old rub-ons from Making Memories, letters from American Crafts, cardstock and the new flocking powder from Martha Stewart on the chipboard heart. It only took about 10 minutes to make this card. It’s really easy to do.

Later I will post pics about how us short folks drive. That is a popular question when folks first meet me. I also notice many nose smudge marks on my car windows. I am cool with that.

Take care and talk to you later!